Hi Everyone,
Thanks for your e-mails and prayers. Kaylee is due to go into surgery this morning. She is the third case so we're not exactly sure when that will be. It has been a rough couple of days for Jennifer and Kaylee, with spots of good news as well.
Jennifer got a room at the Ronald McDonald house which we're very thankful for. She said it is very nice place with computer access and three meals provided each day by volunteers. Sydney and I will be able to stay there when we arrive.
I'll try and explain what I think is going on. Kaylee had her MRI yesterday and everything looked good; Kayle has the least severe form of IA and the doctor said the surgery is very routine and will last about three hours. The MRi did show that Kaylee has a tethered cord which is where the spinal cord is attatched to the skin and is not floating free. She will require additional surgery her at home, although I'm not sure of the timetable.
Last night Kaylee was being cleaned out in preparation for the surgery. Jennifer had to change diapers constantly and the bed needed changing several times' she said Kzylee slept, but I don't think Jennifer got much rest. On top of that as she was getting ready to go to bed last night her cell phone charger broke which was just another irritant. Thanks to the Internet I was able to get another one which will be shipped to her in the next day or two.
Let me just say how greatful I am for the support of friends back here both from church, our neighborhood, and at work. It really has made life much easier for Sydney and me.
I'm also convinced beyond a shadow of a doubt that God gave us Kaylee and that he has his hand on that little girl. I don't know what he has in store for her, or for us, but when I think back over the journey of the last couple of months and the miracles that have taken place each step of the way it is obvious that God is in control. As I think of the journey ahead I'm reminded of this verse from 2 Timothy 1:12 which talks about trust in God based not on feelings, but on his character and our relationship with him. "...because I know whom I have believed, and I am convinced that he is able to guard what I have entrusted to him for that day."
We didn't choose Kaylee; God chose her for us and for that I incredibly greatful. As the saying goes, "I don't know what the future holds, but I know who holds the future" and Kaylee couldn't be in better hands.
Andrew
